American and Australian researchers have developed a digital platform designed to facilitate the assessment, even remotely, of patients with Charcot-Marie-Tooth disease (CMT):
- the platform is available on the web (www.ClinicalOutcomeMeasures.org) and focuses primarily on the assessment tools available for this common neuromuscular disorder,
- it now has more than 1,400 users in over 45 countries, mainly clinicians and researchers,
- tutorials, video clips, training recordings and all kinds of documents are available,
- those interested and involved in the assessment of CMT patients can obtain certification.
This tool, which is available free of charge, is proving very useful in the context of monitoring and clinical trials in CMT.
