A group of international experts has drawn up international recommendations concerning the transition of patients with Duchenne muscular dystrophy (DMD) from paediatric to adult age:
- in real life, this pivotal period is often synonymous with loss of follow-up, which can be detrimental to the functional future of the DMD patient,
- Even though feedback varies from one country to another due to disparities in the organisation of healthcare systems, this observation is shared,
- The fifteen experts recruited came up with 48 consensual recommendations using the Delphi and GRADE methods.
This collaborative effort illustrates the need to harmonise practices.
