The use of hand orthoses in boys with DMD

A Swedish qualitative study assessed the impact of wearing hand orthoses at rest on the quality of life of eight boys with Duchenne muscular dystrophy aged between 8 and 21 years (median age 17.7 years) and five of their parents, immediately after the intervention, and then, for five of them and three of their parents, at a follow-up after four to fifteen months. Analysis of the responses revealed ten categories of experience grouped into three themes:

  • the preconditions for the success of the intervention: cooperation and involvement of carers, adaptation of routines and custom fitting of orthoses ;
  • the benefits of the intervention: maintenance of joint mobility, reduction of pain, improvement in functional abilities; and
  • hope for the future: preserving the ability to carry out daily activities.

 

Intervention with hand orthosis: experience from boys with Duchenne muscular dystrophy and their parents. BM Eriksson, M. Peny-Dahlstrand, B. Archenholtz et al. Disabil Rehabil . 2023 Aug 29;1-8