Using the French National Health Data System (SNDS), the Stamina study analysed information on patients hospitalised for myasthenia gravis or on long-term care for this condition between 2008 and 2020. The results of the study show:
- a prevalence of the disease in France of 34.2 per 100,000 inhabitants (i.e. 22,979 patients) and an incidence of 2.5 per 100,000 in 2019 (13,912 patients), higher figures than previously estimated,
- an average patient age of 58, with a quarter of patients aged 75 and over,
- a slight over-representation of women,
- most exacerbations and myasthenic attacks occurred within a year of diagnosis,
- higher all-cause mortality than a control population (HR = 1.82), especially in men.