Orphanet has published List of Research Infrastructures useful to Rare Diseases in Europe. This useful list is arranged by country and provides an exhaustive list of facilities that are extremely vital for rare disease research. Orphanet performs a systematic survey of the literature to provide an estimate of the prevalence of rare diseases in Europe. A recently updated list on Prevalence of rare diseases: Bibliographic data can be found on the Orphanet website. This update contains new epidemiological data and modifications to existing data for which new information has been made available.
