The 31st Telethon edition reaches a final result of 89,189,384 euros. On 8th and 9th December 2017, the Telethon enthralled the public throughout France. See you on December 7th and 8th 2018!

In February 1958, a handful of parents who were outraged by the ignorance and powerlessness of medicine and science to cope with the neuromuscular diseases that affected their children, decided to embark on the battle against these diseases and created the AFM .
That was the beginning of a long struggle for the recognition of rare diseases, which had until then been neglected, the care of patients and the development of therapeutics, marked by key dates. For 60 years, generations of courageous, committed and determined parents have followed one another with the same goal: to conquer neuromuscular diseases.

Rare Disease Day has grown enormously since the first edition, in 2008, when just 18 countries, mainly from Europe, participated. For 2018 patient groups, medical professionals and friends of Rare Disease Day hosted events in over 90 countries! This year the #ShowYourRare campaign was launched with thousands across the world painting their face to show their support for those living with rare diseases.