{"id":2902,"date":"2023-09-13T15:00:00","date_gmt":"2023-09-13T13:00:00","guid":{"rendered":"https:\/\/www.institut-myologie.org\/imotion\/?p=2902"},"modified":"2023-10-12T15:03:49","modified_gmt":"2023-10-12T13:03:49","slug":"vianney-mentor-of-the-telethon-on-8-9-december","status":"publish","type":"post","link":"https:\/\/www.institut-myologie.org\/imotion\/2023\/09\/13\/vianney-mentor-of-the-telethon-on-8-9-december\/?lang=en","title":{"rendered":"Vianney, mentor of the Telethon, on 8 & 9 December"},"content":{"rendered":"\n

<\/p>\n\n\n\n

After Matt Pokora, Soprano and Kev Adams, it\u2019s singer and composer Vianney\u2019s turn to join forces with researchers, families and thousands of volunteers across France in the fight against rare diseases on 8 and 9 December 2023<\/strong>.<\/p>\n\n\n\n

The ambassador families for the next Telethon<\/strong> reflect the victories won thanks to you, against diseases that were once incurable, and the hope of finding treatments for those who have none. Ibrahima, aged 2, suffers from spinal muscular atrophy, yet he walks like all children his age, using a gene therapy drug administered 5 weeks after birth, even before the first symptoms appeared. Kelly, 15, is smiling because this therapeutic revolution is proving effective for her condition. For L\u00e9on, aged 9, and Tony, father of Ivy, aged 4, the situation is urgent. The urgency to put a name to their disease, the urgency to find treatments for these diseases that are evolving every day.<\/p>\n\n\n\n

Save the date! Join us on 8 and 9 December on France T\u00e9l\u00e9visions and throughout France and abroad for the Telethon 2023!<\/strong><\/p>\n\n\n\n

> Find out more about the T\u00e9l\u00e9thon 2023<\/a> (in French)<\/p>\n","protected":false},"excerpt":{"rendered":"

After Matt Pokora, Soprano and Kev Adams, it\u2019s singer and composer Vianney\u2019s turn to join forces with researchers, families and thousands of volunteers across France in the fight against rare diseases on 8 and 9 December 2023. The ambassador families for the next Telethon reflect the victories won thanks to you, against diseases that were once incurable, and … Continued<\/a><\/p>\n","protected":false},"author":3,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[3],"tags":[],"class_list":["post-2902","post","type-post","status-publish","format-standard","hentry","category-uncategorized"],"acf":[],"yoast_head":"\nVianney, mentor of the Telethon, on 8 & 9 December - I-Motion<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.institut-myologie.org\/imotion\/2023\/09\/13\/vianney-mentor-of-the-telethon-on-8-9-december\/?lang=en\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Vianney, mentor of the Telethon, on 8 & 9 December - I-Motion\" \/>\n<meta property=\"og:description\" content=\"After Matt Pokora, Soprano and Kev Adams, it\u2019s singer and composer Vianney\u2019s turn to join forces with researchers, families and thousands of volunteers across France in the fight against rare diseases on 8 and 9 December 2023. 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