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UMRS 974 - Therapies of the disorders of striated muscle - Prof. T. Voit
UMRS 787 - Myology Group - Dr D. Sassoon
Morphological Unit : The Risler Pavilion - Dr N.B. Romero
Neuromuscular Physiology Lab - Dr J.Y. Hogrel
NMR Laboratory – Spectroscopy Laboratory - Dr P. Carlier
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Myobank - AFM tissue bank for research
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herapeutic protocols
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PTC : extension study open-label in DMD patients with stop mutation (international study)
Investigator
Pr T . Voit
Sponsor
PTC
CCPPRB
Yes
Patient numbers
Total
At the Institute of Myology
165
4
Projected dates
Beginning
Ending
July 2009
July 2011
Financing
PTC
Outcome measures
6 MWT; EK scale; biology; cognition,
Update : October 2009
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